The CRYP Screening Centre…Not Just Any Screening Centre

One of the main forms of fundraising within CRY is done by the families throughout Ireland that have attended the Free Screening Service in the CRYP Centre in Tallaght Hospital.  One of the main reasons these families fundraise for CRY is because they have received such a brilliant service in the centre, that they feel they want to give back to say thank you and to also ensure that this vital service is kept open. Not many people know about the ins and outs of the CRYP Centre, so I thought I would write a few lines on it this week.

The centre is run by Consultant Cardiologist Dr. Deirdre Ward, along with her support team Helen Connaughton (Clinical Nurse II), Alison Storey (Cardiac Technician) and Deborah Blackburn (Administrative Support). One of the things that I constantly hear from families that I meet is that they receive such a warm reception in the centre and that it is different to a lot of other hospital visits you might experience. This is so lovely to hear as many of these families have been through a lot as the result of loosing a young person at a young age to SADS so really need to be treated with kid gloves.

The team at the CRYP Centre tries to facilitate families by seeing all of them within the one day if possible as a lot of them are travelling up from different parts of the country. They are put through a wide range of tests (details are on http://www.cry.ie/index.php/need-help/cryp-screening-centre/cardiac-screening-tests) and once everything has been completed, they are given their results at the end of the day by Dr. Ward. This is one of the most comprehensive screening services you will find in Ireland that is lead by such an experienced cardiologist and the great thing about it is that it is free. Unfortunately though, there are waiting lists because of limited funds. However, if we in CRY work towards increasing the fundraising we do, this would mean the waiting lists would be reduced and patients will receive an even better service than they are already receiving.

Orla Durkan, CRY Ireland.

If you would like to learn about CRY, find out more about our services or participate in a fundraising activity please contact me or check our website.

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Lucia Ebbs of CRY – My Story

I have worked with Michael Greene, Chairman of CRY since the late 80s.  I was his PA in HomeBond.  I was working with Michael when his son Peter died suddenly in 1996 and saw the heartbreak and devastation it caused. When Michael and Marie started up CRY I did the paperwork & admin to help.

It became personal to me on 22nd of May 2002 when my niece Jenny O’Riordan died suddenly.  Jenny (Jenny Jewel to the family) was my sister Kate and her husband Jerry’s only daughter.

Jenny had spent one summer in HomeBond – she called it her ‘summer job’ in her gap year.  Michael got to know Jenny well and he supported her after she returned to college and completed her Masters.  She went on to work with KPMG (now known as BearingPoint) and spent two years there as a Consultant and loved every minute of it making great friends. She particularly loved the location and couldn’t have been any happier there – unless they could have moved closer to Grafton Street for the endless shopping.  BT must have had a drop in cosmetic sales that summer!

Jenny died suddenly on 22nd May 2002 from Cardiomyopathy on her father’s 50th birthday.  I will never forget the call – I was just in the door from a holiday and Kate called to say Jenny had been taken to Blanchardstown Hospital.  I collected Kate and we drove to the hospital but I think I knew at the time that she would be dead when we arrived, she was.   Jenny had died while sitting with her best friend Sinead O’Brien– looking at booking flights for a holiday. 

Jenny’s sudden death devastated all of our lives but especially Kate, Jerry and her brother JJ – she was 26, beautiful, bright, kind and had so much to live for.   Her friends and colleagues were heartbroken too.  Time helps you to live with it but you never forget.  Nothing is ever the same and no family event or occasion happens without you knowing someone is missing. Kate now works as a Volunteer with the Charity and will support families affected as she has been.

After Jen’s death Deirdre Hanley of BearingPoint visited Kate at home to sympathise and told her they wanted to do something positive to remember Jen – after that visit we discussed it and Michael met with Deirdre Hanley and CRY’s website was born – BearingPoint still generously host our website and the family take great comfort from that.

I look after the day-to-day admin at the office in the CRYP Screening Centre in Tallaght dealing with families who approach us for help, support or to offer to fundraise.   I understand a little where they are coming from – every story is different and every time I take a call from a bereaved family I understand a little of where they are coming from. 

My own three boys are patients in the CRYP Screening Centre so I understand the concerns of a parent who needs to come to the Centre for screening and the peace of mind that comes with that visit.

Dealing with a bereaved family does not get any easier with time but I hope we are helping families to get some peace of mind and to come to terms with their loss.

Jenny

Jenny O’Riordan

1975-2002

If you would like to learn about CRY, find out more about our services or participate in a fundraising activity please contact me or check our website.