New York City Triathalon by Ben Duffy

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I hadn’t heard of many people taking part in the NYC Triathlon but from what I read online there are 2 things about this race. The effort that is required in order to get to the start line alone is nearly a mini triathlon in itself and out of a lot of the triathlons out there this is a must do race. Having completed this race and joined the class of 2014 I can safely say that if you get a chance you have got to do it.

Very early on after signing up to the race I knew I wanted to run it for charity. I chose 2, both of which have had some impact on me so I wanted to give back, CRY Ireland and The Alzheimer Society of Ireland.

Something I didn’t appreciate before flying over to NYC from Ireland is the logistics of sourcing equipment 24hrs before the race and being punctual for the official sign in, NYC is a massive city so I managed to get a bike and make it to registration before it closed.

Pre-Race, Sunday Having gone to bed at 11pm and not really slept I was up at 3am and out of the room by 4am, so as you can imagine I wasn’t feeling too fresh and geared up for the race. We made it by taxi to the transition area and I laid out my gear that I would use to complete the other disciplines throughout the race. It was a bit of a walk from the transition area to the swim start, I overheard someone say it was 1.5miles.

Swim I was one the last groups in the water which meant I didn’t get going to until 8:00am. After the race started I made sure I worked my way to the front of the corral (group) so I didn’t have to swim over all of those first-timers. It worked out great. The current was really strong, and it was in our favour.  To my complete surprise, the Hudson River was absolutely pristine. The strong current made for an interesting swim.  I wanted to use it as much as I could, so I didn’t push too hard.  It was actually difficult to tell how much effort I was putting in because I was moving so quickly.  In hindsight, I probably could have gone a little harder.

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Bike I thought Manhattan was flat, I was wrong.  As I started at the back there were a lot of riders ahead of me which gave me great confidence passing them out. I managed to find a good path and stayed clear of most riders for the best part of the bike. The hills weren’t really steep they just kept coming, and some seemed to go on for a while. I rode at a steady effort, as I didn’t want to burn too many calories. Although it is nice to be in the front end of a race, you can easily lose your sense of your effort.
 

Run
The transition areas are located in Riverside Park, a place I got to know very well as I made that walk to and from quite a bit throughout the duration of the pre / post race. The one thing I completely forgot about was the 15% grade hill leading out of the park, running when you get off a bike is hard enough, add a crazy hill climb and you’ll most certainly have jelly for legs.

The majority of the run is based in Central Park but when you finally make it up that hill and you get onto 72nd street, it was a great feeling, nothing like I’d experienced before, running in the streets of NYC. When I finally made it to Central park the sun began to warm up and I really began to feel the effects of the course.

I finished with a time of 2:37:41, which I was very happy about. 2 people who I forgot to mention are my girlfriend Sarah and one of my good friends Brettzer, who lives in NYC, Brettzer for putting both myself and Sarah up for a few nights, and Sarah for generally putting up with me throughout the race.

I am happy to say I raised a total of €1500 for my selected charities and I would like to say a huge thank you to everyone who donated, I know it means a lot to the charities and also to me.

NYC Tri

If you would like to learn about CRY, find out more about our services or participate in a fundraising activity please contact lebbs@cry.ie or check our website.

 

 

 

Forever Young

My name is Brendan O’Mahony. I met my wife Margaret when working in Aer Lingus. We married in 1969 and moved back to my home town and bought a Travel Agency. We had four sons, Fintan, Conor, Kevin and Brian – all Liverpool fans ! Fintan is a teacher, Kevin in Managing Director of Clonmel Travel and Brian works at the IMI in Sandyford. Conor studied languages at UCD and spoke fluent French and Spanish. He got a Masters degree in Portuguese from SalfordUniversity. In May 2004 he joined Pfizer in Dublin.

The world changed forever for our family on July 25th 2006. Conor had gone to play football. He returned to his apartment in Bettyglen and died from SCD. He was 32. When Conor was small his favourite question was ‘what if ? It wasn’t until after college in UCD, that ‘what if’ changed to ‘why not?’ and this new perspective on life allowed him to travel the world. But he was happiest when he was sitting in the family Nissan Sunny (with six on board)  ‘navigating’  on driving holidays through France and Spain. Singing along to ‘Is it Raining In Paris Tonight’  by Bagatelle.

In 1995 he spent the summer on a scholarship at the the University of Lisbon and he left home to work at Whirlpool in Dublin in 1996. He spent five years in their Spanish and Portuguese financial sections. He left Whirlpool in 2002. He then took a year off and travelled round the world chronicling his travels weekly in the Clonmel Nationalist. He joined Xerox in 2003 and he was chuffed when he was headhunted by Pfizer when they opened their new European Financial Shared Services Centre in Dublin in 2004

One of his colleagues, who was bereaved, wrote on his Mass card: ‘On my darkest day, Conor’s smile lit up my life’. Just when it looked like canonisation was on the cards his manager at Pfizer told how they had a swear box in the office and they had put it on Conor’s desk for his convenience!

When he took off around the world his father and mother made him promise that he would not bungee jump as they considered it too dangerous. He kept that promise about not bungee jumping but he had a ironic and  perhaps even a fatalistic view on life. In his last article from abroad he informed all and sundry, including his unsuspecting parents, that he had signed 14 waiver forms during his trip round the world, absolving the organisers of liability in case he was injured or killed. He referred to the forms as ‘send the bits to Clonmel forms’

Conor is back home now, Clonmel was always home. He accomplished  a lot in his short life. People will tell you that time will heal our loss but it doesn’t! We are still learning to live with it. Conor’s fourth anniversary co-incided with Holy Year 2010 in Santiago de Compostela. I walked the Camino Ingles in Conor’s memory and raised funds for CRY. In 2012 the book  Forever Young commemorated  the Camino walk and Conor’s Round the World journey and the proceeds went to CRY.

My first contact with CRY was with Lucia Ebbs n 2010 and she has been a constant support to our family since – thank you Lucia.

The importance of the work done by CRY is inestimable. It’s life saving. Our three boys and our six grandchildren have benefited from screening at CRY. And it’s my hope that many other will continue to benefit from their service

Brendan O’Mahony.

 

SADS & Sports – Is there a link between the two?

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There is a common misconception that by playing sport, particularly at a very high level, this can lead to Sudden Cardiac Arrest. It is not surprising as in the last ten years we have seen some very high profile sports people who have been affected by Sudden Cardiac Arrest. Within the GAA community, Cormac MacAnallen’s death had a profound affect on a lot of people. Cormac was only 24, in the prime of his fitness and the captain of the Tyrone team. He died suddenly in his sleep on 2nd March 2004 (thecormactrust.com). More recently the young Dublin football under 21’s player Ciaran Carr collapsed while training on the pitch on 20th January 2012 and sadly died (ciarancarrfoundation.ie). Both players would have had an underlying heart condition that they were not aware of. By playing sport, this accelerated the condition (as you are putting extra strain on the heart), however, it did not cause them to collapse.

People who have heart conditions carry a slightly higher risk of sudden death during periods of fairly intensive activity than at other times. This is why as a precaution, if someone is diagnosed with a cardiac disorder they will often be advised to avoid competitive sport or endurance training as this can bring on heart failure.

Thankfully if the right equipment is nearby you can survive a Sudden Cardiac Arrest.  The Bolton player Fabrice Muamba collapsed on the pitch while playing against Spurs in White Hart Lane on 17th March 2012. Muamba’s heart stopped for an alarming 78 minutes and thanks to a defibrillator and the medical team nearby he survived. He has now made a full recovery. However, because of his heart condition he has had to retire from the game. Just recently CRY were delighted when the Dublin minor hurler Cormac Ryan undertook a cycle around Ireland for three charities including ours. Cormac was lucky that he discovered that he had a heart condition before anything serious happened. He is an amazing young man and is a great example of how to live well with a heart condition.

The Dublin senior football player Michael Darragh Macauley was recently screened  at the CRYP Centre in Tallaght Hospital. Thankfully he received a clean bill of health and according to Dr. Ward, he has a beautiful heart – some of the ladies may agree with this! Check out the segment below from Ireland AM.

http://www.tv3.ie/3player/show/184/0/0/Ireland-AM

Orla Durkan, CRY Ireland.

If you would like to learn about CRY, find out more about our services or participate in a fundraising activity please contact me or check our website.

Geraldine’s Story

When the fun loving, sporty and mischievous fifteen year old George left for school on 2nd June 2004 little did we know that we had just had our last meal as a family of five. George, the youngest of three boys, left as usual in high spirits. Summer was coming, he had hopes of winning the 1,500 metres on sports day the following Friday and his head was buzzing with exciting holiday plans.

George was a picture of health, so when he collapsed and died while playing rounders at lunchtime that day, surrounded by his teachers and classmates, there was shock and devastation all round.

Niall Gilhooly, one of Georges friends, phoned his mother to tell her the terrible news;

” George is dead and I don’t know what to do.”

But the fourteen year old instinctively knew exactly what to do, Niall and his friends set about supporting each other and George’s family.

These youngsters were an extraordinary support to our family, arriving at our home unannounced, bringing their stories and ‘life’ to our saddened household. The ease with which these young people brought their support is hard to credit. It became a case of ‘everyone getting through this dreadful time for everyone else’. It all came out of love for George and respect for his memory.

As the years have unfolded our family have remained close to all of these youngsters. In a strange way it keeps George alive and these young teenagers, now young adults, have become lifelong family friends.

Recently Niall, now teaching in Australia, sent an extremely generous donation to CRY Ireland in memory of his friend. George obviously continues to be very much in his thoughts. He didn’t want a fuss or thanks; as always Niall moves quietly. However my husband Maurice and my two sons and I were overcome by his generosity and would like to take this opportunity to thank Niall for his kindness and friendship to us and to George and to thank a young man for the maturity and respect he displayed at one of the most difficult times of all our lives .

As I have mentioned, Niall is now teaching in Australia and I cannot imagine a more suitable candidate to become the mentor of young people.

Enclosed is a photo of George taken the December before he died and, on a happier note, a more recent photo of just a few of George’s wonderful friends taken at my eldest son’s wedding last summer.

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Geraldine Fitzgerald, 18th October 2013.

If you would like to learn about CRY, find out more about our services or participate in a fundraising activity please contact me or check our website.

Seán

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My son, Seán, died of SADS in the early hours of 17 October 2010, at home. He was 19 years old. His mother, Pauline, and his sister, Susanna (aged 16 at the time), were away for the weekend. It was a strange and terrible day, and it kicked off what has been the strangest few years of our lives.

We are a close family – we supported each other in a time of raw emotions and disbelief, and we had wonderful support from extended family, neighbours, friends and our local community. Sean, of all people, had seemed much too alive to die, yet we found ourselves living through his wake and funeral, and the aftermath – as well as the concurrent ‘Big Freeze’, which made everything seem even more unreal.

It was particularly difficult for Susanna, who had just entered her Leaving Cert year at the time of Sean’s death. She coped then and has coped ever since – she is now in France, in the third year of a degree course – but coping took its toll, as it did on Pauline and me. Pauline went back to work very soon after Sean died, and I continued with my freelance editorial work from home, as I still do. Just getting around was extremely difficult that winter – we live in a fairly remote rural area. The world seemed to have lost its bearings. As Bob Marley sang in a song that Sean loved, everything had changed – nothing remained the same.

Contact with CRY was hugely helpful for us. There was the relief of being screened for potential heart problems and given the ‘all clear’; also, the cause of Sean’s death was explained clearly to us for the first time. Susanna in particular has benefited from ongoing help and support from CRY, which is a wonderful organization.

For me, coping included writing a blog and songs. Pauline ‘bought into’ what I was writing, and found it helpful. She and I often sang some of the songs together in the evenings. Sean’s birthdays and anniversaries have been emotional, although really we think of him all the time – if he is not at the front of our minds at any given time, then he is certainly at the back of them. For his 21st birthday we organized a night of music in the local pub, at which some of Sean’s and our friends and local musicians performed. It was a great success, and we raised some money for CRY.

Other people move on with their lives, naturally – Sean’s friends, for example. It has been more difficult for Sean’s girlfriend, Clio, and for us. On some levels we move on, but on others we do not, and never will. But we don’t feel sorry for ourselves: we know that many other people have had to face equal, or even worse, trauma.

Healing takes a long time, and can only be partial. Heartache persists. We love Sean, and Sean is gone – though often we feel that he is still around, watching over us and helping us when we need help. I certainly feel that way. We are still standing, and we are resilient.

Brendan O’Brien – 20th September 2013

The O’Brien Family featured on Nationwide on 18th September-http://www.rte.ie/player/show/10199932/

You can also watch Brendan’s song “Seán and Clio in the snow” http://www.youtube.com/watch?v=niTFyZmZg1I

If you would like to learn about CRY, find out more about our services or participate in a fundraising activity please contact me or check our website.

The CRYP Screening Centre…Not Just Any Screening Centre

One of the main forms of fundraising within CRY is done by the families throughout Ireland that have attended the Free Screening Service in the CRYP Centre in Tallaght Hospital.  One of the main reasons these families fundraise for CRY is because they have received such a brilliant service in the centre, that they feel they want to give back to say thank you and to also ensure that this vital service is kept open. Not many people know about the ins and outs of the CRYP Centre, so I thought I would write a few lines on it this week.

The centre is run by Consultant Cardiologist Dr. Deirdre Ward, along with her support team Helen Connaughton (Clinical Nurse II), Alison Storey (Cardiac Technician) and Deborah Blackburn (Administrative Support). One of the things that I constantly hear from families that I meet is that they receive such a warm reception in the centre and that it is different to a lot of other hospital visits you might experience. This is so lovely to hear as many of these families have been through a lot as the result of loosing a young person at a young age to SADS so really need to be treated with kid gloves.

The team at the CRYP Centre tries to facilitate families by seeing all of them within the one day if possible as a lot of them are travelling up from different parts of the country. They are put through a wide range of tests (details are on http://www.cry.ie/index.php/need-help/cryp-screening-centre/cardiac-screening-tests) and once everything has been completed, they are given their results at the end of the day by Dr. Ward. This is one of the most comprehensive screening services you will find in Ireland that is lead by such an experienced cardiologist and the great thing about it is that it is free. Unfortunately though, there are waiting lists because of limited funds. However, if we in CRY work towards increasing the fundraising we do, this would mean the waiting lists would be reduced and patients will receive an even better service than they are already receiving.

Orla Durkan, CRY Ireland.

If you would like to learn about CRY, find out more about our services or participate in a fundraising activity please contact me or check our website.

What exactly is SADS?

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What Exactly is SADS?

As part of my job in CRY I visit a lot of schools, universities, workplaces and community centres to educate people on Sudden Adult Death Syndrome (SADS) and the work that our charity CRY does. I find on my visits that a lot of people are not quite sure what is involved when someone dies from SADS. So I thought this would be a good topic to talk about and I promise to keep this as simple as possible. I am not a medical professional either so I will have to keep it as simple as possible!

The best way to describe what happens to the heart when someone dies from SADS is to compare it to when you switch off a light – the heart literally stops. It’s not like a heart attack, which can be more gradual. It is for this reason that the person has very little time to be resuscitated by a defibrillator. I suppose another comparison would be to a car battery. You need that jolt from the defibrillator to get the heart going again. Unfortunately a defibrillator does not always work and mouth to mouth resuscitation does not work in this case. Even so, it is so important for defibrillators to be available in as many public places as is possible to give an individual the best chance of survival.

A lot of young people who die from this seem to be normal active people. But there are symptoms that you can look out for- chest pains, palpitations (please note these are very common and can be caused for a variety of reasons), fainting and seizures during exercise and shortness of breath during exercise. But the biggest thing to look out for is a family history of someone dying suddenly at a young age and for someone within your family living with a heart condition. There is a lot more detail on this on our website http://www.cry.ie/index.php/need-help/information.

Many people associate SADS with sports and it is a misconception that sport can cause this condition. People who die from SADS already have a heart condition which, in the majority of cases, they do not know about. Sport generally increases the work that the heart has to do, so can increase the incidents of sudden death during a period of intense activity.

If you feel you need to be screened because there is a family history or you suffer from any of the symptoms above, contact your GP and if they feel it is necessary they can refer you on to the CRYP Screening Centre. Please note the majority of families that the centre sees have a family history of SADS. For further information check out our website at http://www.cry.ie/index.php/need-help/information. I hope this has been helpful in giving you a better understanding of what SADS is.

Orla Durkan – Fundraising Manager

If you would like to learn about CRY, find out more about our services or participate in a fundraising activity please contact me or check our website.